Thursday, March 18, 2010
Week 13 and 14 Update--There Shall Be a Homecoming
Yes you read correctly..Harrison will be making his homecoming debut the beginning of next week..They are saying Tuesday. This is an exciting and long awaited moment. Please join me in this time of celebration and praise to God for such a little miracle and blessing.
So on to the updates..
Oxygen- Harrison had his oxygen removed on Tuesday and has been doing great without it. To speak to this great blessing and praise is to know that Harrison was suppose to come home on Thursday (today) and the plan was that he would still be on oxygen 24/7. As of today he is still holding his on. Praise God for this..many doubted he would be ready before coming home to come off of it and so far he has proven them otherwise. Please pray that he continues to do well.
Heart- His heart is still doing great and his incision site looks fantastic. Praise for such a great outcome.
Liver- His liver function was tested again and as I have said before we pray that his numbers go down and not up..so here is the comparison 3/1 3/8 3/17
Total Bilirubin 19.4 18.1 15.9
Direct Bilirubin 13.7 7.8 9
ALT 309 150 123
AST 144 206 200
Ammonia 98 69
So as you can see, overall his numbers are going down. Please continue to pray for him because these are still not in the normal range but praise God for the progress thus far..
Now don't you feel smarter after reading all those numbers..haha
Feeding- Well after being put back on continuous feeds, Harrison has now been able to take his feeds over an hour. He is still being fed through his G-tube and not by bottle. Please pray that as the bottle is introduced that he will be able to do so smoothly. This can be a difficult process. He still has trouble holding large volumes quickly so pray that over time this will become easier.
Growth and development- As of today Harrison weighs 9lbs and 13oz. To compare.. he weighed 8lbs 9oz on March 1st. So his gain has been steady. He has been progressing in his physical therapy and is now able to lift his head and hold it for a short time. He also has been becoming more alert and motivated to play with toys and of course interact with people. He has a smile that will warm your heart and a frown that just breaks your heart. One of his therapists stated that he is very motivated and alert which is a good sign for future progress. Please continue to pray that Harrison will only get stronger and praise God for the progress he has made.
Eyes and Ears- Harrison passed his hearing test which was wonderful news. The opthomologist rechecked his eyes based on some concerns I had. She says she sees nothing at this time that concerns her but would like to evaluate him in office. Please pray that further evaluations will bring nothing new.
Jamie and I will be staying overnight in a rooming in room in the NICU this weekend. Here we will be able to have Harrison with us in our room, but he will still be monitored by the NICU. We will be able to do all of his cares ourselves but have a nurse available at any time in case we have any questions or concerns. This is a great opportunity for us and a wonderful service the hospital has to offer.
We are about to enter a new "Normal" for our lives again so please pray that we are able to transition smoothly. Pray for Harrison's health, that he will continue to make progress in all areas of his health.
Praise for the wonderful blessings of needing no oxygen, passing hearing test, improving liver function, and improving in growth and development.
Thank you to all the prayer warriors for you have been such great support and comfort. I hope that you have also been blessed in seeing what God has done for Harrison.
And a special praise and Thank you for Harrison's doctors and nurses. Sarah, Laurie, Laura, Shanna, Amanda, Lindsey, Jennifer, Tony, and many others who have cared for Harrison since birth. You mean the world to me..I could leave with peace and rest easily at night knowing you that you each were there to hold him when he cried, comfort him when he was in pain, play with him when he was awake, tell him it was ok when he was afraid,hold the pacifier in his mouth when he couldn't do it himself, give him a bath to help him sleep, change his clothes and bedding umpteen times when he couldn't hold down his feeds, call the doctor when you knew something wasn't right, and provide the absolute best care that anyone could give to a baby with his needs. Thank you for putting up with my endless questions, obsessive concerns, and thank you for being there for me. Words do not express my gratitude and love I have for each of you. So if you read this I am sending you a virtual hug and it is filled with love and tears. I love you all and thank God for placing each of you in Harrison's life.